A genetic disorder known as hemophilia affects the body’s capacity to produce blood clots that may halt bleeding. Every year on April 17, people all around the world mark World Haemophilia Day to raise awareness of hemophilia and other forms of bleeding diseases. The Global Federation of Hemophilia observes the day (WFH). The topic and background of World Hemophilia Day, the diagnosis and treatment of hemophilia, as well as some statements about the condition, are covered here.
2023’s International Haemophilia Day Theme
The WFH has announced that “Access for All: Prevention of Bleeds as the Global Standard of Care” would be the focus of this year’s World Haemophilia Day. The WFH implores local policymakers and governments to improve patient access to care at home and to increase the provision for preventive care.
History of International Haemophilia Day
Frank Schnabel, a Canadian businessman who was born with severe hemophilia, founded the WFH in Montreal, Canada, in 1963. On April 17, 1989, the inaugural International Haemophilia Day was commemorated. Schnabel’s birthday is honored on this day.
Haemophilia’s effects
Patients with hemophilia are more prone to bruises and may get haemarthrosis, which is bleeding into the joints and the brain. Movement may become limited and the joints may sustain lasting injury. The brain may be impacted by seizures and persistent headaches.
Identification and treatment
Patients’ blood is tested to determine if clotting factors are low or absent, as well as whether their family has a history of hemophilia. There are tests to identify and treat the illness during pregnancy and after delivery. Children may be born with the disorder.
World Haemophilia Day: Quotes
“He was like a child with haemophilia: every contact drew blood.”
– Graham Greene, Brighton Rock
“Bleeding isn’t optional for most of us.”
– Eileen Wilks
“As to diseases, make a habit of two things — to help, or at least, to do no harm.” – Hippocrates
“I don’t think of all the misery, but of the beauty that still remains.” – Anne Frank, The Diary of a Young Girl
“The wound is the place where the Light enters you.”
– Rumi